There is more discipline available to malignancy patients than what one attention squad can keep up with. New diagnostics, treatments, trials, and suppliers keep emerging, and whenever norm of attention runs out, patients are normally remaining to fig out what alternatively power be imaginable on their own.

Future of Cancer Care Today (FCCT) helps malignancy patients and their families connect the dots. Our PhD-led squad surfaces diagnostic and care options applicable to a patient's case, including those beyond norm of care, and finds vetted suppliers and providers who activity beyond norm protocols. FCCT does not substitute doctors or create care decisions. We create playbooks and curate resources to assistance families ask improved questions, so they can stroll into the next conversation alongside a fuller picture.

Free for patients.

Important to know.

Future of Cancer Care Today is not a medicinal provider. We do not diagnose, prescribe, or straightforward treatment. We provision a non-clinical assistance tier focused on information, education, and decision support, intended to complement your association alongside your attention team. Some materials may be generated alongside the assistance of synthetic intellect and have to be reviewed alongside your medicinal providers before notifying any attention decisions. All decisions concerning your attention pertain to you and your doctor.

A curated build of suppliers, clinicians, and investigation groups we have encountered through our work.

Listings are informational only. FCCT does not endorse, certify, or authority these suppliers, and inclusion does not connote a referral or recommendation. Please verify particulars immediately alongside the provider and conversation any next steps alongside the patient’s attention team.

SUPPLIERS AND CARE PROVIDERS

updated regularly

SELF-SERVE PLAYBOOKS

updated regularly

  • Find open-minded physicians

    What to appearance for, and what to ask, whenever seeking an oncologist consenting to think beyond norm protocols.

  • Assemble your tumor board

    How to build a small collection of expert perspectives on your case, including who to contain and how to run a session.

  • Tips for medication admission advocacy

    A applicable walkthrough of expanded access, Right to Try, and medicinal test pathways, alongside what tends to activity and what tends to backfire.

  • Bridging to a medicinal trial

    How to extend the timing gap between sickness progression and a medicinal test that hasn't yet opened, through expanded access, Right to Try, and state-level frameworks akin Montana SB535.

  • Preserving your tumor tissue

    What tissue conservation makes imaginable and how to commencement the conversation alongside your attention team.

  • Comprehensive tumor diagnostics

    What thorough profiling can add beyond a norm panel and how it fits into decisions at diagnosis, recurrence, and following treatment.

  • Therapeutic ladder template

    A template for organizing care options and questions to conversation alongside your attention team.

  • Personalized malignancy vaccines

    What personalized malignancy vaccines are, what published studies display so far, how patients admission them, and questions to conversation alongside your attention team.

Director, Patient Connections

Bayli DiVita Dean, Ph.D.

Bayli is a researcher and discipline communicator dedicated to improving the lives of those diagnosed alongside cancer. She developed her ability in malignancy immunotherapy investigation at the University of Florida and in translating complex specialized findings into accessible tongue during her period at the American Brain Tumor Association. Bayli was additionally a chap at the National Institutes of Health, Office of the Director, through the American Association for the Advancement of Science Science and Technology Policy Fellowship, anywhere she addressed guideline needs connected to incorporating the community into medicinal investigation and bioethical issues. Inspired by her mother's assessment alongside metastatic colon cancer, she now applies her caregiving, scientific, and communication ability to provision data and compassion to clients of FCCT.

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Associate, Patient Information

Donnia Robins, MSc.

Donnia is a researcher alongside training in chemistry, community health, and pharmaceutical sciences. Before joining FCCT, she was an Early Stage Researcher in the AGePOP consortium, an EU Horizon 2020 program focused on medicines for particular populations, including older adults. At FCCT, Donnia supports tolerant case research, asset mapping, and preparedness of instructional materials for patients.

Patient-First Data and Tissue Release

One position authorization US patients can use to petition or straightforward the publish of records, imaging, test data, and accessible tissue to recipients they choose.

We invitation patients, and the organizations that create or clasp their data or tissue, to use the publish and portion feedback on how it plant in practice. This volition assistance us create the form clearer, easier to process, and additional productive for everyone involved.

Why This Form Is Needed

Patients can normally get medicinal notes and summary reports. Obtaining the underlying materials can be additional difficult. These may contain first imaging files, pathology materials, sequencing files, lab data, and accessible tissue. They may be needed for a second opinion, additional testing, medicinal test evaluation, or research.

What the Form Does

  • Identifies who is authorizing the publish and anywhere the materials are held. The form includes the patient’s information, the authority of any individual representative, and multiple releasing institutions and departments.
  • Defines the records and data covered. This includes medicinal and billing records; laboratory, pathology, and imaging reports; first imaging files; digital health data exports; genomic and lab reports; raw data files; and connected assay and inspection information. The authority covers all dates.
  • Includes accessible tissue and another specimens. Covered materials contain pathology slides and tissue blocks, as fine as blood, plasma, serum, skeletal marrow, and another biologic materials.
  • Addresses delicate data separately. The tolerant must first the categories they authorize for release, including familial or genomic, HIV/AIDS-related, mental health, and reproductive or intimate health information. Psychotherapy notes are excluded. Substance use disturbance records covered by 42 C.F.R. Part 2 necessitate distinct consent.
  • Defines who may obtain the materials. The authority covers stated healthcare, laboratory, data exchange, and investigation recipients, as fine as another individual or institution identified by the patient. The recipient may inform the releasing institution anywhere to dispatch the materials.
  • Creates a position authorization. Once the form is on file, an authorized recipient may petition covered materials without obtaining a new tolerant signature for all request. The authority remains productive for up to 99 years unless the tolerant revokes it or applicable law requires an before expiration.
  • Explains the limits of releasing bodily materials. Tissue and another specimens can be released lone whenever they remain accessible and publish is permitted. Materials that were abandoned or not preserved cannot be recovered. A publish may additionally decrease what remains for forthcoming attention or testing.
  • Includes norm authority terms. These location purpose, expiration, revocation, imaginable re-disclosure, voluntariness, permitted fees, the correct to a copy, governing law, and signatures. The form is intended to fulfill HIPAA authority requirements under 45 C.F.R. § 164.508.

Requests remain topic to applicable law, availability, and organizational policy. The form covers the publish of the materials. Later use or sharing by the recipient may necessitate a distinct agreement.

Email feedback to: [email protected]

Materials move immediately from the holder to the tolerant or chosen recipient. FCCT does not obtain or shop data or tissue and does not provision lawful or medicinal advice.

Work alongside us.

If our activity could be helpful to you or your community, delight attain out. There is no disbursal to patients or families for our help.

Patients and Caregivers

Whether you are newly diagnosed, facing progression, or trying to fig out what comes next, we may be capable to assistance you think additional plainly concerning the way ahead.

Clinicians, Researchers, Partners

If you are operating in diagnostics, therapeutics, personalized medicine, or health technology, and accept patients need improved assistance navigating complexity, let's conversation concerning how our activity could complement yours.

Patients and families say that a 30-minute call with us frequently shifts how they think concerning what’s possible.